Liam had his second monthly appointment with his cardiology team. They did a lot of extensive testing on his heart: he underwent an echocardiogram, EKG, and related blood work. They are happy with his weight gain, he's almost 13 lbs, which is great. They are going to keep a watchful eye on just the right… Continue reading November 14th, 2019: Cardiology Appointment
Blog Feed
November 5th, 2019: Thank you
From Pam: I wanted to let everyone know how incredibly thankful I am for everyone’s support, prayers, love, well wishes, emails, texts, donations, and concern for our sweet little Liam. I get teary eyed just reading everyone’s messages of hope and seeing his GoFundMe page. We are so blessed. Thank you to everyone for being… Continue reading November 5th, 2019: Thank you
October 28th, 2019: Race For Every Child 5k Video
This is a short video I put together from the 5K I ran last weekend hosted by Children's National. I ran this race in honor of my son Liam and as a way to share our appreciation to everyone who has been following his journey over the past two months.❤️ #LiamStrong #Grateful https://youtu.be/xqeTP4FsJ74
October 21st, 2019: Race For Every Child 5K
This past weekend I participated in the Race For Every Child 5K hosted by Children’s National in Washington DC. This is the hospital that we were at for 5 weeks when Liam was born. During his time there we were in the cardiac ICU where he underwent his two open heart surgeries. I ran in… Continue reading October 21st, 2019: Race For Every Child 5K
October 12th, 2019: IronMen
In honor of today being the Hawaii Ironman World Championship, I'm reflecting back on when I raced in this amazing event 12 years ago, crossing the finish line 3 years after leaving the ICU and discovering why the race motto is 'Anything Is Possible' after almost 15 hours in the lava fields in Kona. Now… Continue reading October 12th, 2019: IronMen
October 8th, 2019: Daily Appointments
We've had daily follow-up appointments with Liam's amazing care team since getting home from the hospital. They did an ultrasound on his brain and his team was happy to see that it didn't show any seizures or abnormal activity since his open heart procedures. This is very reassuring, especially since he had to be on… Continue reading October 8th, 2019: Daily Appointments
October 4th, 2019: First Cardiology Follow-Up
Liam had his first of many follow-up appointments with his cardiology team. They are happy with the way his heart is healing from the recent procedures, and his oxygen saturation levels and heart rate are where they like them to be. We will find out soon when his next open heart operation will be, most… Continue reading October 4th, 2019: First Cardiology Follow-Up
September 29th, 2019: World Heart Day
Over the past 5 weeks we have received so many encouraging messages from people all over the world, including many parents of children with CHD. In honor of today being World Heart Day, my family and I would just like to personally thank everyone for the support. In the near future I'm looking forward to… Continue reading September 29th, 2019: World Heart Day
September 25th, 2019: Home Sweet Home
This is truly a special day - Liam is finally home! To all our family, friends, and to everyone who has been following his story over the past month, a heartfelt thank you for your encouragement, prayers, and support. I’ve often heard that miracles happen to those who believe in them, Thank You for believing… Continue reading September 25th, 2019: Home Sweet Home
September 23rd, 2o19: Healing Weekend
Liam had a healing weekend. He passed his hearing exam, along with his car seat test. He is feeding better than expected, and we will follow up with a surgical team in the near future to discuss treatment for the malrotation of his intestines. Pam and I also both passed our mandatory infant CPR training/test.… Continue reading September 23rd, 2o19: Healing Weekend