Liam was transported to the step-down unit last night and had a busy day today full of testing and evaluations with his new care team. He tolerated his NG tube feeds overnight, his vitals remained stable, and he's enjoying the large crib that he's now in. He had an upper GI study done this afternoon,… Continue reading September 17th, 2019: Out of CICU
Blog Feed
September 15th, 2019: Calm Weekend
Liam had a calm weekend. He’s currently on room air, tolerating NG tube feeds, and his levels are remaining stable. His nurse today took him on a little wagon ride around the cardiac ICU, which he seemed to enjoy. The latest news that we’ve received is that he might be transferring to the step down… Continue reading September 15th, 2019: Calm Weekend
September 12th, 2019: Stable Day
Liam was given a central line yesterday so his medical team has a more permanent way to draw blood and give medications. They removed his pacer wires from his heart, and they are slowly giving him NG tube feeds. We’re relieved to hear that his infection and lactate levels have improved. His breathing tube was… Continue reading September 12th, 2019: Stable Day
September 9th, 2019: Thank You
At this time in 2004 I was in ICU on a ventilator, had several heart operations and related procedures, and needed 36 blood transfusions that saved my life. Now 15 years later, my newborn son is going through a very similar situation. As a blood donation advocate for the past 15 years, I've dedicated my… Continue reading September 9th, 2019: Thank You
September 8th, 2019: A Calmer Day
Liam had a calm and stable day. He’s mildly sedated with the breathing tube, waking up at times and moving around a little bit. His color is improving and lactate levels are also slowly normalizing. He also received another blood transfusion earlier this afternoon. Pam and I would like to again share our sincere appreciation… Continue reading September 8th, 2019: A Calmer Day
September 7th, 2019: Setback
Liam unfortunately had another setback early this morning. His white blood cell count rose to 30,000 and his lactate jumped from around 1.2 to over 8, which is very dangerous. They’ve added a different course of antibiotics to treat an infection. His team explained that the new stent that was placed in the shunt is… Continue reading September 7th, 2019: Setback
September 5th, 2019: Antibiotics Needed
Liam had a nice calm day today. His levels are looking a little better, especially his oxygen saturation levels, which were the biggest concern last week. His white blood cell count is a little high at the moment, so they are giving him a strong course of antibiotics to fight any infection he might have.… Continue reading September 5th, 2019: Antibiotics Needed
September 4th, 2019: Liam’s Name
When Pam and I found out we were expecting last December, we began discussing potential names depending on whether we had a boy or girl. Right after the doctor shared the gender with us at 20 weeks, we knew Liam would be the name. While the doctor finished up the ultrasound, I remember quickly looking… Continue reading September 4th, 2019: Liam’s Name
September 3rd, 2019: Levels Remain Stable
Since Liam’s second open heart procedure on Saturday, his oxygen levels and blood pressure are slowly starting to improve. They were able to take him off the ventilator this morning, which is another step in the right direction. The highlight of the day was when Pam and I got to hold him and see his… Continue reading September 3rd, 2019: Levels Remain Stable
August 31st, 2019: Emergency Surgery Needed
Liam had a bit of a setback yesterday, but his team said this can happen sometimes. Following his shunt surgery on Friday, his oxygen saturation levels, heart rate and blood pressure were not quite where they should be. He was closely watched over night and late yesterday morning his amazing team was able to rapidly… Continue reading August 31st, 2019: Emergency Surgery Needed
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