Tag: #liamstrong

We've had daily follow-up appointments with Liam's amazing care team since getting home from the hospital. They did an ultrasound on his brain and his team was happy to see that it didn't show any seizures or abnormal activity since his open heart procedures. This is very reassuring, especially since he had to be on… Continue reading October 8th, 2019: Daily Appointments

Liam had his first of many follow-up appointments with his cardiology team. They are happy with the way his heart is healing from the recent procedures, and his oxygen saturation levels and heart rate are where they like them to be. We will find out soon when his next open heart operation will be, most… Continue reading October 4th, 2019: First Cardiology Follow-Up

This is truly a special day - Liam is finally home! To all our family, friends, and to everyone who has been following his story over the past month, a heartfelt thank you for your encouragement, prayers, and support. I’ve often heard that miracles happen to those who believe in them, Thank You for believing… Continue reading September 25th, 2019: Home Sweet Home

Liam had a healing weekend. He passed his hearing exam, along with his car seat test. He is feeding better than expected, and we will follow up with a surgical team in the near future to discuss treatment for the malrotation of his intestines. Pam and I also both passed our mandatory infant CPR training/test.… Continue reading September 23rd, 2o19: Healing Weekend

Liam was transported to the step-down unit last night and had a busy day today full of testing and evaluations with his new care team. He tolerated his NG tube feeds overnight, his vitals remained stable, and he's enjoying the large crib that he's now in. He had an upper GI study done this afternoon,… Continue reading September 17th, 2019: Out of CICU

Liam had a calm weekend. He’s currently on room air, tolerating NG tube feeds, and his levels are remaining stable. His nurse today took him on a little wagon ride around the cardiac ICU, which he seemed to enjoy. The latest news that we’ve received is that he might be transferring to the step down… Continue reading September 15th, 2019: Calm Weekend

At this time in 2004 I was in ICU on a ventilator, had several heart operations and related procedures, and needed 36 blood transfusions that saved my life. Now 15 years later, my newborn son is going through a very similar situation. As a blood donation advocate for the past 15 years, I've dedicated my… Continue reading September 9th, 2019: Thank You