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It’s been one week since Liam’s cardiac cath and electrophysiology study. He was back to his old self within 72 hours and he has been recovering well over the past few days. We had his pre-op today, which involved getting a chest X-ray, EKG, bloodwork/labs done, and a meeting with his surgical team.  Tomorrow Liam… Continue reading Surgery Scheduled for Tomorrow

Yesterday Liam had an appointment to get another cardiac catheterization and to do an extensive electrical study of his heart. Back in August around his birthday, he experienced a sudden episode of SVT (rapid/irregular heartbeat) which was very scary. His team decided to hold off on his heart surgery until we did this electrical study… Continue reading Liam’s Cardiac Catheterization and Electrophysiology Procedure

It’s been one week since Liam’s cardiac catheterization and he’s been doing really well. He was back to his normal self within 24 hours of the procedure. This was great because we were able to celebrate his 3rd birthday over the weekend. Liam was so happy to help decorate and enjoy his Baby Shark cake… Continue reading Happy 3rd Birthday Liam!

Liam had a good day yesterday! Despite having to go through anesthesia and the cardiac cath/MRI procedures, the medical team was pleased with his cardiac output and circulation. The large amount of information they gathered will be very helpful as we prepare for his upcoming heart surgery in a few weeks. He was a brave… Continue reading Liam’s Cardiac Catheterization Update

Hope everyone is having a great summer! It’s been a few months since our last update on Liam. He is growing well and talking (and singing) 😊 up a storm! He has a fun personality and is always making us laugh. Liam and his big sister Clara have been having a great summer. They have… Continue reading Liam’s Cardiac Catheterization

How far you have come little one. It’s been 2 years this month since your third open heart surgery. You have fought so many battles since birth. You were whisked into a world that was full of so many challenges, with more challenges planned as we prepare for your next heart operation later this year.… Continue reading Heart Month Appreciation

Hello family and friends! Just wanted to share an update on how Liam is doing. Liam recently had his 6 month check with his cardiologist. His vital signs, ECHO and EKG all looked great! We are still tentatively planning his Fontan surgery for this upcoming summer 2022. We do not have the best time frame… Continue reading December Update

Happy 2nd birthday to our sweetest boy Liam! What pure happiness this past year has been! We’ve seen you learn to walk, talk, feed yourself, dance, sing, run, and play. We’ve seen your love for your best friend and sister, Clara, grow. We’ve seen your love for your grandparents, great grandparents, aunts, uncles and cousins… Continue reading Happy 2nd Birthday, Liam!

As we are heading into Summer, we wanted to provide a brief update on Liam. He is doing well! He recently had his physical therapy evaluation and his team determined he no longer needs therapy! His motor skills have improved so much over the past few months. He is constantly running after his big sister… Continue reading June Update

Liam wanted to send everyone an update! He is now 19 months old and had a great 18 month well primary care check. He is growing steadily. His development is in keeping with babies his age. He has his physical therapy evaluation coming up, but they feel he is right where he needs to be.… Continue reading April Update